April is #Sarcoidosis Awareness Month

Fun fact, I have #Sarcoidosis.

I was diagnosed in 2011. My Future CEO was 3 years old. I was scared shitless. I knew nothing about the disease. All I knew is that my primary care physician and my ENT specialist, saved my life. I went in to my doctor complaining of low energy, feeling lethargic, feeling tired all the time, not being able to taste my food, coughing, night sweets and I thought I was just getting fat. That went on for 6 months. Then my primary care physician looked at my neck and said “somethings wrong” you gotta see specialist right away.

They scoped me and saw this large growth on my larynx. They had to remove it. … but my iron was so low, there was no way they were going to clear me for surgery. So after I was put on iron and vitamin D supplements, it was time for me to have surgery. When they opened me up I had 3 times as many growths on my layrnx. They removed all but a tiny one that was too close to a nerve. Due to the size of one large growth, I didn’t even know it, but I lost a vocal chord. My sort of high pitched voice was permanently gone. I am relegated to sounding melancholy, which matches my persona most of the time. LOL! … and that was the beginning. Sarcoidosis and I were rocking together ever since.

After what seemed like a 6 year remission, my Sarcoidosis came back suddenly and now I manage it with medication. It is what it is. I’m just happy to be alive and with my child.

Staying put during quarantine is now a keen decision to stay alive. It is literally a race against the clock for me to be outside and thus I don’t leave the house, except to go to my vet for the dogs or the ATM.


So I hope that people who know those who suffer with Sarcoidosis will be keen to help find a cure.

As a reminder, Sarcoidosis is a rare, often chronic inflammatory disorder that causes the formation of granulomas, or clumps of inflammatory cells. This can occur in almost any organ in the body, most commonly affecting the lungs, lymph nodes, skin and eyes. While this disease affects as many as 200,000 Americans, there is currently no known cure and treatment options are limited and often ineffective.

I have chosen to support the Foundation for Sarcoidosis Research (FSR) by fundraising for Team KISS! Please do think about supporting Foundation for Sarcoidosis Research through my page: https://stopsarcoidosis.rallybound.org/eycmann1565